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Support Groups You are not alone. There are countless thousands of children across the country with PANDAS, many of whom remain undiagnosed. If you suspect PANDAS, seek experienced medical help and support from one of the groups meeting in your area. The Providers link under Other Resources will take you to the current list of doctors and other care providers. The current list of support groups is posted below. If you think you might be interested in facilitating a support group, please contact the national group coordinator Kathy Abou-Rjaily at ksar@rcn.com. She will give you everything you need to get started.
ALWAYS CHECK WITH FACILITATORS BEFORE ATTENDING MEETINGS DUE TO POSSIBLE CANCELLATIONS FOR WEATHER AND OTHER EMERGENCIES.
Ms. Maloney is guided in her efforts through close contact with top PANDAS physicians and researchers throughout the country. She regularly seeks input from them about the best course to pursue in advocating for the recognition and treatment of this disorder.
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The above photograph was taken summer 2011 with a parent group in Seattle. Ms. Maloney stands in the center front of the photo. Sammy is in the green t-shirt. His brother Josh stands behind him.
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SUPPORT GROUPS
Arizona Kate Fleck - facilitator Phoenix, AZ kateazpandas@gmail.com
Arkansas Kim Hadley - facilitator The Perk 3980 Wedington Dr. Ste 19 Fayetteville, AR 72704 RSVP: (479)466-9130 or krhadley@gmail.com Group meets the fourth Thursday of each month at 7pm
California Heather Ewalt - facilitator Orange County, CA Contact Heather at hgratza@yahoo.com
Jacqueline Van Nes & Cathy Cendroski - facilitators 2nd floor conference room 1900 Garden Rd Monterey, CA RSVP: jacqueline@vannes.us or call 831-277-8161 Group meets the first Monday of each month at 6:30 pm
Colorado Gretchen Rode - facilitator Pueblo, CO Contact Gretchen at gkrode@aol.com
Connecticut Joanne Fournier - facilitator 7 Cantor Knoll Ellington, CT RSVP: (w) (860)528-9397 or joannefournier@comcast.net Group meets the fourth Wednesday of each month at 7pm
Florida Shelley Carmine Bowles - facilitator Contact Shelley at (407)325-5719 or scbowles@earthlink.net
Illinois Debbie Padgett – facilitator Contact Debbie at tnarbyort@comcast.net
Indiana Tennille Fondren – facilitator Contact: Suptennille@aol.com
Iowa Missy Gaido Allen – facilitator The Java House 713 Mormon Trek Iowa City, IA RSVP: (319)338-6871 or missygaidoallen@gmail.com Group meets the fourth Thursday of each month at 7pm
Kentucky
Sarah Jane Alleman - facilitator
Lexington, KY
859-396-8718
Louisiana
Michelle Reinhardt – facilitator RSVP: michellesreinhardt@gmail.com Group meets the fourth Tuesday of each month 7 pm
Massachusetts - Hanover Lisa Grisolia – facilitator Sky Spa 439 Columbia Rd Hanover, MA 02339 RSVP: skyspahanover@yahoo.com or Phone: 781-858-5667 Group meets the third Monday of each month 7 pm
Massachusetts - Salem Kara McLaughlin – facilitator 8 Front St. #305 Salem, MA 01970 RSVP: PANSsupport@comcast.net or Phone: 978-821-1233
Mississippi Brad Robinson – facilitator Contact Brad at pandaschild@yahoo.com or pandaschild@facebook
Missouri - St. Louis Kelly Wooldridge – facilitator pt4kiddos@yahoo.com First Meeting: Wednesday, February 15, 2012
New Jersey - Edison Audray – facilitator JFK Neuroscience Institute (NSI) Conference Room 65 James St. Edison, NJ 08817 RSVP: pandashelp@hotmail.com Group meets the second Monday of the month 7:15 - 8:15 pm
New Jersey - Livingston Heidi Schnapp – facilitator Livingston, NJ RSVP: Pandas.livingston@gmail.com
New Jersey - Parsippany Maria Messana – facilitator Parsippany Library –Group Study Rm 1 440 Halsey Rd Parsippany, NJ 07054 RSVP: parsippanypandas@gmail.com Group meets the first Monday of each month at 7pm
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New York – Port Jefferson Andrea Lyons – facilitator Port Jefferson, NY RSVP: itsall4them@optonline.net Group meets the fourth Saturday of each month 7 pm
New York – Hyde Park Nicole DeLorenzo – facilitator Hyde Park Free Library 2 Main St. Hyde Park, NY 12538 RSVP: delo3@optonline.net Group meets the fourth Tuesday or Thursday of each month 7 pm
New York – Kings Park Angela Blanchett – facilitator 18 Balboa Drive Kings Park, NY 11754 RSVP: angelablanchet@gmail.com or Phone: 631-745-3552 Group meets the fourth Friday of each month 7:00 pm
New York - Tarrytown Rebecca – facilitator El Dorado Diner 460 South Broadway Tarrytown, NY RSVP: pandas.westchester@gmail.com
North Carolina Dana Cannady – facilitator Starbucks 3800 Lake Boone Trail Raleigh, NC 27607 RSVP: sunshine.cannady@gmail.com or Phone: 919-337-7632 Group meets the first Wednesday of each month 7:00 pm
Ohio Michele Snyder – facilitator Panera Bread 689 Howe Ave. Cuyahoga Falls, OH RSVP: michele_223@hotmail.com or Phone: 330-305-0503 Group meets the fourth Friday of each month 6:30 pm
Sharla Starker – facilitator Colin's Coffee 3714 Riverside Drive Columbus, OH 43221 RSVP: uamamabear@gmail.com
Group meets fourth Thursday of each month at 7:30 pm
Oregon Julie Stowell – facilitator Eugene, OR Contact Julie at edsjas@mac.com
Rochelle Scholl - facilitator
McMinnville Community Center
700 Evan Street
McMinville, OR 97128
Contact Rochelle: mymonkers@hotmail.com
Group meets the second and last Wednesday of the month
7pm to 9pm
Pennsylvania - Philadelphia Judy Kelly – facilitator Contact Judy at jkelly1031@verizon.net
Pennsylvania - Pittsburgh Darla Hall – facilitator Pittsburgh, PA Contact: darhalls@gmail.com
Tennessee Melanie Puckett - facilitator Contact Melanie at mmpuckett@hotmail.com
Texas - Frisco Deborah Quade Conner – facilitator Water’s Edge 5475 Coit Road Frisco, TX 75034 RSVP: Debbie – deborah_conner@yahoo.com Group meets the fourth Monday of each month at 7pm
Texas - Euless Roxann Hartline Krautkramer – facilitator Starbucks 3920 State Hwy 121 Euless, TX 76039 RSVP: Roxann – rkrautkramer@tx.rr.com or (817) 657-3856 Group meets the fourth Monday of each month at 6:30pm
Texas - Woodlands Kerry Lubecki– facilitator Montgomery County South Regional Library 2101 Lake Robbins Dr. The Woodlands, TX 77380 RSVP: kerrylubecki@gmail.com Group meets the fourth Thursday of each month at 6 pm
Virginia Sarah Johnston – facilitator Location: Contact Sarah for details sarah_johnst@yahoo.com Group meets the fourth Saturday of each month at 5 pm
Virginia - Chesapeake Beth Crowe – facilitator Kaufman and Canoles PC 524 Johnstown Rd. Chesapeake, VA 23322 RSVP: notelizabeth37@yahoo.com Group meets the fourth Saturday of each month 11:00 am
WASHINGTON
Brett Henry – facilitator Madison Park Starbucks 400 East Madison Avenue Seattle, WA 098112 RSVP: 206-322-7642 or (cell) 206-898-2466 Group meets the third Thursday of each month at 7pm
INTERNATIONAL
UK Suzanne Ayres - facilitator Oxford, England Contact Suzanne: suzanne.ayres@yahoo.co.uk
Sweden Gunilla Gerland - facilitator Contact Gunilla: gunilla@pandasinfo.se
Mexico
Elva Gutiérrez – facilitator
Metepec, Edo. de. Mex.
Contact Elva: elgasa@prodigy.net.mx
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